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We are pleased to announce the recipients of the 2025 Frank Gavin Patient Engagement Leadership Awards, established in honour of CHILD-BRIGHT's first Director of the Engagement Program . This year, we are thrilled to recognize two partners with lived and living experience (PWLEs) for t
Get out your calendars! The upcoming 2026 CHILD-BRIGHT Conference will be held on February 2 and 3, 2026 in beautiful Toronto, Canada. Join us as we celebrate our successes, broker new connections, and look to the future of implementation and knowledge mobilization in Canadian child disability rese
In 2024, CHILD-BRIGHT members were invited to write a review article about how to conduct patient-oriented research (POR) with children and youth for a special issue of the journal, Children . The goal of the article was to provide researchers with comprehensive guidance on conducting POR, includin
The National Youth Advocacy Council (NYAC) is responsible for advising CHILD-BRIGHT-funded projects on optimizing youth engagement activities. Composed of Canadian youth members with lived and living experience of a brain-based developmental disability, the members are available to inform research d
The CHILD-BRIGHT Network and Kids Brain Health Network (KBHN) are teaming up to support youth engagement in brain-based developmental disability research! Effective as of January 2025, this partnership will allow KBHN-funded researchers and project teams to enhance their research and po
Welcome to our new blog series highlighting the invaluable research contributions of our parent partners! Parents of children with brain-based developmental disabilities are an essential part of our community of partners with lived and living experience (PWLEs). Their unique insights, bot
By Samadhi Mora Severino CHILD-BRIGHT parent research partner and equity, diversity, and inclusion (EDI) Advisor Samadhi Mora Severino sheds light on her experiences with bipolar disorder while supporting one child with severe cerebral palsy and another with ADHD and a learning disabilit
Welcome to our blog series highlighting the work of our postdoctoral fellows! Postdoctoral fellows play a crucial role within CHILD-BRIGHT's research projects underway. These fellows are passionate about implementation science (IS) and patient-oriented research (POR) and its potential to improve he
Summer students look back on their time at CHILD-BRIGHT This summer, we were delighted to welcome 11 undergraduate students to our 2024 CHILD-BRIGHT Summer Studentship Program (SSP): Shannon Walsh, Parya Borhani, Natalie Wong, Muhammad Saim, Megan Liang, Lola Irelewuyi, Hanna Huguet, Anto
Creating productive working relationships between researchers and partners with lived and living experience (PWLEs) doesn’t happen from one day to the next. It takes time, trust, and mutual respect. But as the following story shows, it’s through these relationships that PWLEs have the power to shape
Five new positions available! CHILD-BRIGHT has launched a new call for postdoctoral researchers to work with our network in support of children with brain-based developmental disabilities! Fellowships with the CHILD-BRIGHT Network represent a valuable opportunity to learn and apply patient-orient
Shafniya, a recent college graduate, joined the NYAC in 2021 after seeing a recruitment ad. She was looking for a way to get involved in brain-based developmental disability (BDD) research as a youth volunteer, and the term ‘patient-oriented research’ (POR) was brand-new to her. “When I first joine
CHILD-BRIGHT's National Youth Advocacy Council (NYAC) is composed of research partners under 30 living with brain-based developmental disabilities. They’re helping to move the needle on doing research with (not just for) people with lived and living experience of disability.
Claire, a final-year medical student and longtime NYAC member, is a passionate advocate of patient-oriented research (POR), which seeks to meaningfully engage partners with lived and living experience (PWLEs) at every stage of research.
For Jacob, self-advocacy is about sharing his perspective. Having experienced discrimination in both his personal and professional life, he’s determined to raise awareness of brain-based developmental disabilities, both within and outside of health research.
The CHILD-BRIGHT Network is thrilled to introduce our new Director of Engagement, Jenny Gilbert! CHILD-BRIGHT's Engagement Program focuses on authentic involvement of research partners with lived and living experience (PWLEs) in all facets of CHILD-BRIGHT's patient-oriented research work in Canada.
In the past few decades, perspectives on Indigenous health in Canada have evolved dramatically. Thanks in no small part to the work of First Nations, Métis, and Inuit Elders, knowledge keepers, health care professionals, researchers, and advocates, there is increasing awareness of the need to view I
We are pleased to announce the recipients of the 2024 Frank Gavin Patient Engagement Leadership Awards, established in honour of CHILD-BRIGHT's first Director of the Engagement Program . This year, we are thrilled to recognize two partners with lived and living experience (PWLE
CHILD-BRIGHT is delighted to announce the recipients of the 2024 CHILD-BRIGHT Graduate Student Fellowship in Patient-Oriented Research! This fellowship is designed to create practical training opportunities for graduate students and postdoctoral fellows engaged in patient-oriented researc
What kind of innovations can emerge from research conducted in networks? Why would you do child health research as part of a network? What perspectives do different key players bring to research networks – and how do these members benefit from their participation? These were som
CHILD-BRIGHT has officially updated the language it uses to better represent the realities of our research partners. In this post, we explain: how we arrived at these changes, why we deemed them necessary, and why language matters in health research.
Welcome to our new blog series highlighting the work of our Azrieli CHILD-BRIGHT postdoctoral fellows! Within the various research projects underway at the CHILD-BRIGHT Network, postdoctoral fellows play a crucial role. This year, thanks to the generous contribution of the Azrieli Foundation, we’re
Welcome to our new blog series highlighting the work of our Azrieli CHILD-BRIGHT postdoctoral fellows! Within the various research projects underway at the CHILD-BRIGHT Network, postdoctoral fellows play a crucial role. This year, thanks to the generous contribution of the Azrieli Foundation, we’re
Join the CHILD-BRIGHT Network's Knowledge Mobilization (KM) Family Hub for an engaging KM-focused webinar! This virtual event has been tailored to family members of children with brain-based developmental disabilities. Attendees will gain a foundational understanding of KM principles and t
Now Accepting Applications! The CHILD-BRIGHT Network is proud to launch the third iteration of the Frank Gavin Patient Engagement Leadership Award , which recognizes exceptional patient engagement leadership in pediatric brain-based disability research. Established in 2021, the award was named
Welcome to our new blog series highlighting the work of our Azrieli CHILD-BRIGHT postdoctoral fellows! Within the various research projects underway at the CHILD-BRIGHT Network, postdoctoral fellows play a crucial role. This year, thanks to the generous contribution of the Azrieli Foundation, we’re
Welcome to our new blog series highlighting the work of our Azrieli CHILD-BRIGHT postdoctoral fellows! Within the various research projects underway at the CHILD-BRIGHT Network, postdoctoral fellows play a crucial role. This year, thanks to the generous contribution of the Azrieli Foundation, we’re
Welcome to our new blog series highlighting the work of our Phase 2 postdoctoral fellows! Within the various research projects underway at the CHILD-BRIGHT Network, postdoctoral fellows play a crucial role. This year, we’re delighted to welcome a new cohort of up-and-coming scientists who are passi
We are thrilled to announce that acclaimed interdisciplinary researcher and academic Marlyn Bennett will be joining the CHILD-BRIGHT Network’s EDI-DI Program as co-lead with Nomazulu Dlamini. Marlyn’s role will be pivotal in ensuring that the principles of equity, diversity, inclusion, decoloniz