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Shafniya, a recent college graduate, joined the NYAC in 2021 after seeing a recruitment ad. She was looking for a way to get involved in brain-based developmental disability (BDD) research as a youth volunteer, and the term ‘patient-oriented research’ (POR) was brand-new to her. “When I first joine
For Jacob, self-advocacy is about sharing his perspective. Having experienced discrimination in both his personal and professional life, he’s determined to raise awareness of brain-based developmental disabilities, both within and outside of health research.
CHILD-BRIGHT's National Youth Advocacy Council (NYAC) is composed of research partners under 30 living with brain-based developmental disabilities. They’re helping to move the needle on doing research with (not just for) people with lived and living experience of disability.
Claire, a final-year medical student and longtime NYAC member, is a passionate advocate of patient-oriented research (POR), which seeks to meaningfully engage partners with lived and living experience (PWLEs) at every stage of research.
The CHILD-BRIGHT Network is thrilled to introduce our new Director of Engagement, Jenny Gilbert! CHILD-BRIGHT's Engagement Program focuses on authentic involvement of research partners with lived and living experience (PWLEs) in all facets of CHILD-BRIGHT's patient-oriented research work in Canada.
In the past few decades, perspectives on Indigenous health in Canada have evolved dramatically. Thanks in no small part to the work of First Nations, Métis, and Inuit Elders, knowledge keepers, health care professionals, researchers, and advocates, there is increasing awareness of the need to view I
We are pleased to announce the recipients of the 2024 Frank Gavin Patient Engagement Leadership Awards, established in honour of CHILD-BRIGHT's first Director of the Engagement Program . This year, we are thrilled to recognize two partners with lived and living experience (PWLE
CHILD-BRIGHT is delighted to announce the recipients of the 2024 CHILD-BRIGHT Graduate Student Fellowship in Patient-Oriented Research! This fellowship is designed to create practical training opportunities for graduate students and postdoctoral fellows engaged in patient-oriented researc
What kind of innovations can emerge from research conducted in networks? Why would you do child health research as part of a network? What perspectives do different key players bring to research networks – and how do these members benefit from their participation? These were som
CHILD-BRIGHT has officially updated the language it uses to better represent the realities of our research partners. In this post, we explain: how we arrived at these changes, why we deemed them necessary, and why language matters in health research.
Welcome to our new blog series highlighting the work of our Azrieli CHILD-BRIGHT postdoctoral fellows! Within the various research projects underway at the CHILD-BRIGHT Network, postdoctoral fellows play a crucial role. This year, thanks to the generous contribution of the Azrieli Foundation, we’re
Welcome to our new blog series highlighting the work of our Azrieli CHILD-BRIGHT postdoctoral fellows! Within the various research projects underway at the CHILD-BRIGHT Network, postdoctoral fellows play a crucial role. This year, thanks to the generous contribution of the Azrieli Foundation, we’re
Join the CHILD-BRIGHT Network's Knowledge Mobilization (KM) Family Hub for an engaging KM-focused webinar! This virtual event has been tailored to family members of children with brain-based developmental disabilities. Attendees will gain a foundational understanding of KM principles and t
Now Accepting Applications! The CHILD-BRIGHT Network is proud to launch the third iteration of the Frank Gavin Patient Engagement Leadership Award , which recognizes exceptional patient engagement leadership in pediatric brain-based disability research. Established in 2021, the award was named
Welcome to our new blog series highlighting the work of our Azrieli CHILD-BRIGHT postdoctoral fellows! Within the various research projects underway at the CHILD-BRIGHT Network, postdoctoral fellows play a crucial role. This year, thanks to the generous contribution of the Azrieli Foundation, we’re
Welcome to our new blog series highlighting the work of our Azrieli CHILD-BRIGHT postdoctoral fellows! Within the various research projects underway at the CHILD-BRIGHT Network, postdoctoral fellows play a crucial role. This year, thanks to the generous contribution of the Azrieli Foundation, we’re
Welcome to our new blog series highlighting the work of our Phase 2 postdoctoral fellows! Within the various research projects underway at the CHILD-BRIGHT Network, postdoctoral fellows play a crucial role. This year, we’re delighted to welcome a new cohort of up-and-coming scientists who are passi
We are thrilled to announce that acclaimed interdisciplinary researcher and academic Marlyn Bennett will be joining the CHILD-BRIGHT Network’s EDI-DI Program as co-lead with Nomazulu Dlamini. Marlyn’s role will be pivotal in ensuring that the principles of equity, diversity, inclusion, decoloniz
Welcome to our new blog series highlighting the work of our Phase 2 postdoctoral fellows! Within the various research projects underway at the CHILD-BRIGHT Network, postdoctoral fellows play a crucial role. This year, we’re delighted to welcome a new cohort of up-and-coming scientists who are passi
Welcome to our new blog series highlighting the work of our Phase 2 postdoctoral fellows! Within the various research projects underway at the CHILD-BRIGHT Network, postdoctoral fellows play a crucial role. This year, we’re delighted to welcome a new cohort of up-and-coming scientists who are passi
In June 2023, one of our dearly valued network members, Carrie Costello, was selected as the recipient of our Frank Gavin Patient Engagement Leadership Award . Established in honour of CHILD-BRIGHT's first Director of the Citizen Engagement Program, the award recognizes patient engagement leaders i
In collaboration with the Azrieli Foundation , CHILD-BRIGHT is launching a fourth call for postdoctoral researchers to work on our implementation science research projects in support of children with brain-based developmental disabilities. We are looking to fill three new po
Thanks in part to the work that we do at the CHILD-BRIGHT Network, patient-oriented research has been growing as a groundbreaking paradigm in healthcare in Canada that emphasizes active involvement and collaboration with people with lived experience and their communities in all aspects of the resear
The CHILD-BRIGHT Network is searching for an Indigenous Co-Lead to collaborate with Dr. Nomazulu Dlamini, Program Lead of our Equity, Diversity, Inclusion, Decolonization & Indigenization (EDI-DI) Program . If you are a Canadian academic leader with a deep commitment to equity, diversity,
In the month of June, we pause to commemorate and acknowledge two important occasions: National Indigenous Peoples Month and PRIDE Month. These days hold great significance in acknowledging and honouring the past and continuing experiences, contributions, and struggles of the Indigenous Peoples and
Three new positions available! In collaboration with the Azrieli Foundation , CHILD-BRIGHT is sending a third call for postdoctoral researchers to work on our implementation science research projects, and to help programs mobilize knowledge to action
After more than six years of refining its approach to patient engagement, CHILD-BRIGHT has formed strong relationships with youth and parent-partners across Canada. In turn, our partners have developed expertise in consulting with patient-oriented research projects focused on childhood brain-based d
The One Child Every Child initiative is a Canada-first research initiative with a vision for all children to be healthy, empowered and thriving. On April 28, it was announced that the Canada First Research Excellence Fund had awarded a $125-million grant to launch One Child Every Child, led by th
We are pleased to announce the winners of the 2022 CHILD-BRIGHT Training Innovation Fund (TIF) competition! The TIF facilitates innovative training initiatives that complement ongoing patient-oriented research (POR) activities focused on childhood brain-based developmental disabilities. For
Since the creation of our network, CHILD-BRIGHT’s Citizen Engagement (CE) Program has fostered meaningful engagement with youth and families. Its Citizen Engagement Council (CEC) is composed of youth and young adults with brain-based developmental disabilities, parents of children with brain-based
Working with our CCENT project as part of the 2021 CHILD-BRIGHT Summer Studentship Program, Clara Moore focused on data analysis and visualization and assisted with a meta-analysis of CCENT’s 16 measures administered over an 18-month period to capture outcomes such as stress, mental health, and ex
Working with our READYorNot project as part of the 2021 CHILD-BRIGHT Summer Studentship Program, Claire Dawe-McCord conducted a review to identify key issues and policies that need to be improved relative to the health care transition of youth from the pediatric to adult care settings. She also wo