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How collaboration across medical disciplines and patient advocacy cured a rare disease [PODCAST]

Patient advocate Tami Burdick discusses her article, "How collaboration saved my life from a rare disease doctors couldn't diagnose." Tami shares her personal and arduous journey with granulomatous mastitis (GM), a rare and poorly understood condition, and how embracing collaborative health care in three key ways led to her successful remission. She details the crucial partnership between her conventional Western medicine doctor, surgical breast oncologist Dr. Kelly McLean, and her functional medicine practitioner, Jared Seigler, which allowed for innovative testing and a broader perspective on her illness. Tami also highlights the power of patient-to-doctor collaboration, emphasizing how her own relentless research and self-advocacy were instrumental in uncovering answers that the traditional system initially missed, largely due to time constraints on physicians. Furthermore, she underscores the profound impact of patient-to-patient collaboration through her support group, where shared experiences and knowledge provided critical guidance and helped others navigate the complexities of GM. Tami's story is a testament to the potential of integrating different medical approaches, the necessity of patient empowerment, and a call for systemic changes in health care to foster more such collaborations, including better insurance coverage for alternative practices and more dedicated time for doctor-patient interactions.

Avarie's story: Confronting the deadly gaps in food allergy education and emergency response [PODCAST]

Patient advocate Lianne Mandelbaum discusses her article, "What Avarie's death in Rome teaches us about the gaps in food allergy education." Lianne reflects on the tragic death of Avarie, a young American student with a known tree nut allergy who died in Rome due to anaphylaxis, contrasting this loss with the promising advancements in food allergy research and treatment. She meticulously outlines the systemic failures in Avarie's case: despite informing the restaurant of her allergy, she was served pesto containing cashew; her first epinephrine auto-injector reportedly failed; and the responding ambulance lacked the appropriate medication. Lianne underscores how lived experience with anaphylaxis shapes risk perception and highlights the urgent need for comprehensive, lifelong food allergy education starting from a young age. This education must cover crucial skills such as safe food ordering, self-advocacy in various settings including when studying abroad, and clear emergency response protocols. She points to a pervasive societal underestimation of food allergies and calls for widespread education at all levels—for patients, families, schools, universities, the hospitality industry, physicians across specialties to ensure timely allergist referrals, and particularly for first responders to be properly equipped and trained. Lianne advocates for making the knowledge and use of epinephrine as normalized and accessible as CPR, urging the community to translate knowledge into action to prevent further avoidable deaths.

Physician job change: Navigating your 457 plan and avoiding tax traps [PODCAST]

Shane Tenny discusses his article, "Navigating your 457 plan: key steps for physicians changing jobs." He provides crucial advice for physicians, particularly those with non-governmental 457(b) plans, on how to manage these retirement savings vehicles during a career transition. Shane clarifies that a 457(b) is a type of deferred compensation plan offered by state and local governments and certain tax-exempt organizations, differing in key ways from 401(k)s. For physicians leaving employers with non-governmental 457(b)s, he highlights critical considerations such as the likelihood of mandatory distribution upon separation, the general inability to roll these funds into an IRA or another qualified plan (a common option for 401(k)s and governmental 457(b)s), and the potential for the entire plan balance to become taxable income in the year of distribution. Shane outlines actionable steps for physicians, including thoroughly reviewing their specific plan documents, engaging in strategic tax planning, exploring possibilities for scheduled distributions to spread out tax impacts if the plan allows, and assessing the retirement benefits offered by their new employer. He also notes unique features of 457(b) plans, such as the absence of a 10 percent penalty for withdrawals before age 59 ½ and a special catch-up contribution provision for employees in the three years preceding their normal retirement age.