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Turquoise and emerald water, majestic snow-capped mountains and carpet of evergreens. A trip to Banff’s must-see lakes did not disappoint and there was an unexpected bear sighting too! Our visit to both lakes on the fifth day of our week-long trip worked to our advantage, as the weather was great. As we learned through ourContinue reading "The Quiet Beauty of Banff’s Lake Louise and Moraine Lake"
A 25 km bike ride in Western Canada provided an unforgettable scenic experience for my family. On the fourth day of our week-long visit to Banff in Alberta, I planned a full-day outing around T’s love for biking; it was just last summer that our 9-year-old took off his training wheels. There are numerous bikeContinue reading "Cycling the Legacy Trail and to Johnston Canyon in Banff"
We kicked off T’s summer with a week-long visit to Banff, a town within Banff National Park in Alberta. Our Canada Day departure got off to a slow start with a 2-hour mechanical delay, while we were already seated on the plane. “Is the plane going to crash?” T asked loudly and I reminded himContinue reading "Family Summer Visit to Beautiful Banff in Alberta"
We kicked off T’s summer by marching in Canada’s largest Pride parade and championed freedom to information. I have a leadership role on my work’s Pride employee group and was part of the team that organized our march. For the second year, we chose the theme of intellectual freedom and reused signs from last year,Continue reading "Born This Way"
Grade 3 is in the history books and we’re kicking summer off with soccer. T has recently developed a love for soccer. Thanks to his CYW, he had his own soccer ball and played soccer at recess with a group of boys. There were bumps along the way, as T gets upset when he doesn’tContinue reading "Goal Posts"
T loses control of his emotions on a regular basis, but today, it was for the best and proudest reasons. The outdoor city pool opened this weekend and it’s a summer tradition for us to spend time there. It’s a small plain pool but it is special place for us, because it saved our pandemicContinue reading "Going Off the Deep End"
The cereal box T created for his media literacy class is called “Growing Stronger.” I like that they teach Grade 3 students media literary, as well as nutrition, in a hands on way. Just as diet influences health of kids with fetal alcohol spectrum disorder, our parenting journey has demonstrated that medication can be anContinue reading "Using Medication for a Child with FASD"
On special days when stars align, the energy we send out come flying back at us. T recently completed the EQAO standardized Grade 3 test earlier this month. T’s school was so supportive. He had his CYW’s support to complete the test, as he gets distracted on the computer. On the first day of theContinue reading "Boomerang"
After years of being on the receiving end of mischief, our cat got back at her 9-year-old nemesis. “OH MY GOD!” T screamed Friday morning. It was a PA Day and he stayed home instead of going to daycare, as we were going to a FASD caregiver group meetup at lunch. “What is it?” IContinue reading "But Is It Art?"
One thing that keeps me up as a special needs parent is thinking about our child’s future. My workplace is developing its next multi-year strategic plan. Participating in the process made me think about T’s next few years. Any special needs parent will tell you we just want to make it to the end ofContinue reading "Futures Planning for the Neurodiverse Child"
Slow down, take the detours, be open to the unexpected, stay present, soak in the moment. We all end up at a finish line, so what’s the rush? It’s a valuable lesson I’ve learned as T’s parent. Our family recently helped celebrate the 18th birthday of a friend’s son. It seemed like yesterday that heContinue reading "The Joy in the Meander"
A painful truth about being a parent of a child with FASD is the world often sees them at their worst. A parent shared this, between tears, during a recent weekly virtual FASD caregivers group and I wanted to hug her because I felt her heartache. I then thought about Mothers Day lunch with familyContinue reading "Step with the Best Foot Forward"
The first text message simply and sweetly said, “I love you.” I was en route on my early hour-long commute to work and it was a welcomed surprise. On in-office days, I often leave before T is up and when I do see him before I leave, I get sweet long hugs, which energize meContinue reading "Postcards from the Edge"
In 2015, the hubby and I finished our South America trip at Rio de Janeiro. It was our last solo trip before T unexpectedly came into our lives. I revisited this special city last night when Madonna completed her Celebration Tour on Copacabana Beach to a record 2 million people. We watched her show inContinue reading "Keep the Faith"
Eight years ago today, we got a call from Children’s Aid Society. We were matched with a child! It was a Thursday evening and the hubby and I were shocked, because it had been seven years since we had started the adoption journey. We had given up hope we would be parents. They shared T’sContinue reading "Family is Forever"
The heart does go on and on. T’s latest obsession is the Titanic, quite the step up from Paw Patrol! This was likely inspired from YouTube, as he spends lots of time watching videos about the Titanic and other famous shipwrecks. He loves to draw pictures and pretend play with great imagination about the doomedContinue reading "Sinking Ships, Rising Hearts"
A beautiful sunny t-shirt weather Spring Sunday gave T and I the recharge we needed. After breakfast, we practiced reading two chapters in his latest book then headed to one of our favourite nature spots: Rouge Park. I feel blessed for this urban oasis near our home. I appreciate the government recently adding a boardwalkContinue reading "Nature is Healing for Neurodiverse Kids"
Being able to receive and apply feedback, as hard as it can be to hear sometimes, is key to growth. In February, halfway past the Grade 3 school year, the hubby and I had our teacher conference with T’s teacher, CYW and the school’s special education coordinator. We discussed T’s areas for improvement: reading, writingContinue reading "Open to Feedback"
An overzealous adult crossed the line with our neurodiverse son and awoke the Papa Bear in me. While waiting at the airport for our early morning flight home after our March Break trip a few weeks ago, T was disregulated. He didn’t get a lot of sleep and he was short tempered, hyperactive and mouthy.Continue reading "Turbulence"
In your lowest moments, you find yourself again. We enjoyed a cave exploration excursion during our March Break family trip to Mexico. Our first activity was to rappel down 7 storeys into a small cave. T went first. As he was lowered by the guide, down a small hole that quickly opened widely, he saidContinue reading "Down into the Depths"
After a cloudy few months, we’re spending March Break at a place of happiness. We booked this family getaway last October, before I knew one of my closest friends would lose her brave battle with cancer in November. Never would I have guessed Ma would pass away a few weeks later. For better or worse,Continue reading "Surga"
On Saturday, surrounded by family and friends, near and far, we said goodbye to Ma. It was celebration and catharsis. I am thankful for the last few weeks to reflect and to remember what an inspiring life Ma lived, full of love and accomplishments. Loved ones from afar, including Philippines and Guam, joined the serviceContinue reading "Celebration of Life"
During school lunch a few weeks ago, T proclaimed to his class he was refunding his parents. His CYW recounted to us with amusement, via text message, that T ranted out loud that he had told Daddy (the hubby) many times that he didn’t want meatballs for lunch and still got them. Due to thisContinue reading "Angels in the Infield"
As social creatures, we yearn for connection and we thrive when we have psychological safety. This was the key takeaway from a virtual talk by FASD expert Nate Sheets I attended during a recent caregivers group get-together. I’ve followed Nate’s work for a while but it was my first time attending a live talk andContinue reading "Finding Connections"
We remind our little guy that he is stronger and braver than the monsters in his head. During a recent Sunday morning, around 1:30, I was woken up by the hubby having a fit. T had turned on all the lights in the house, downstairs included, and was up playing with his toys – becauseContinue reading "The Darkest Dark"
Live and love as if it’s your first and last day on Earth. Our caring, curious, funny and not-so-little guy turned 9 this weekend. How is that possible?! The past year brought adventures and hard losses and through it all, he steps forward with his fun-seeking, resilient and endlessly energetic spirit. Our consecutive hard lossesContinue reading "Life is a Gift"
Sometimes, a picture sums up life’s depth of emotions better than words ever could. Yesterday, we had lunch with family to celebrate Ma and my aunt’s birthdays. Ma’s absence was noticeable. Afterwards, my uncle, recently returned from the Philippines, gave me Ma’s urn. It was a strange feeling holding it in my hands. The logicalContinue reading "A Thousand Words"
We took T to his first concert, Madonna’s Celebration Tour, and it provided a needed holiday. Our family had a challenging start to 2024 and this show was a ray of light during gray days. We prepped T for his first concert by looking at photos of the venue and show and speaking about whatContinue reading "Ray of Light"
On Friday, T asked to stay home instead of going to daycare for PA Day. “I just need a break,” he said. On Professional Activity (PA) Days, kids get a day off school and teachers focus on professional learning. My first instinct to T’s request was no. The hubby and I had work, remotely atContinue reading "Personal Affection Day"
I recently visited my childhood neighbourhood in the Philippines, 35 years after moving away. Over the holidays, I unexpectedly flew to Manila after Ma fell ill and with a very sad outcome. After Ma was admitted to ICU, I could no longer visit her. So, with thanks to uncles, I visited Binondo, the neighbourhood myContinue reading "The Oldest Chinatown in the World"
Grit, resilience and work ethic are wonderful lessons I learned from Ma. I thought about times she demonstrated them during my recent unexpected visit to the Philippines, as she battled for her life. At 15, she left her home in the province to move to the city in Manila to attend university – working tutoringContinue reading "Fighting Spirit"
During the holidays, I unexpectedly flew to the other side of the world to visit my ailing Ma. Ma moved back to the Philippines in July. In early December, her myositis autoimmune disease, which attacks and weakens her leg muscles, resurfaced and a few days before Christmas, she had a fall at home. On ChristmasContinue reading "Far From Home"
Christmas is a time for forgiveness and it is the kindest gift one could give and receive. When we were having rough patches this fall with T – a part of the FASD parenting life – we met with our developmental pediatrician, who has been supporting T since he was 18 months. In addition toContinue reading "The Gift of the Redo"
We attended T’s wonderful school holiday concert this week and it moved me to tears. The school concert was the first since the pandemic, and T and the kids did such a great job. It brought back wonderful memories of holiday and Spring concerts, pre pandemic, when T was in preschool and kindergarten. I rememberContinue reading "“I Believe in the Power of You and I”"
In my next life, I want to be a therapy dog. I took part of Friday off to take T to a PA Day paw therapy program hosted by the amazing Surrey Place team as part of their ongoing services for children with FASD and caregivers. T and I loved the horse therapy program theyContinue reading "In the Dog House"
Helping my third grader build writing skills is like making pizza; layer one ingredient on at a time. The process sometimes feels like a struggle with a disability like FASD layered on top – but it nonetheless feels like I’m watching something special grow from infancy. It brings back fond memories of the early days,Continue reading "The Writing Parlour"
Stories and personal testimony can inform, inspire and be a lifeline to someone. December 1 marks the fourth anniversary of this blog and my first post, introducing T’s prognosis and our family. I started my blog as a way to process my thoughts on the FASD parenting journey and to raise awareness and advocate forContinue reading "Why Stories Matter"
This is the start of a beautiful friendship. Last fall, T’s child and youth worker made the excellent suggestion to look into a Big Brother-style mentorship program for T. I believe in mentorship and surrounding T with positive influences is important, because making friends is hard for kids with FASD. Despite best efforts, we haveContinue reading "Big Brother"
We said goodbye to a lifelong friend this weekend and I am reminded to never hesitate to live, love and laugh. The universe works in wonderful ways, connecting people in seemingly coincidental ways. In Grade 7 English class, I first became friends with Jenny because we randomly sat together in Mrs Piazza’s English class withContinue reading "No Day But Today"
The energy we send into the universe is the energy we invite into our lives. I found this belief challenged the past few weeks, because of T’s chaos – meltdowns, foul language, rude attitude, defiant behaviour at school. It was draining – and at one point, I told the hubby I did not have theContinue reading "Love and Karma"