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Funding to study documentation errors and patients online record access | Participatory eHealth
I'm so excited to share that we have been granted funding from the Swedish Research Council (VR) for a 3-year project aiming to explore how we can use patients’ online record access to find and address documentation errors that could lead to patient safety issues and harm. I will be the project lead, and collaborate…
User Evaluation of the Swedish Patient Accessible Electronic Health Record – a long overdue publication | Participatory eHealth
Finally! Data for this study was collected years ago, but we just never had the time to sit down and analyze it properly until last year. But we somehow managed to squeeze it into the pandemic schedule at last, and now it's published! my husband + my laptop Hägglund M, Scandurra IUser Evaluation of the Swedish…
Scoping review on patients access to mental health records | Participatory eHealth
My PhD student Annika Bärkås shares first authorship for the first systematic scoping review study collating existing evidence about sharing EHRs or clinical notes with people treated for mental health conditions. It's an excellent study, that I'm very proud to have co-authored! The study aimed to map available evidence on patient accessible electronic health records…
Open notes will be the mandatory in the US | Participatory eHealth
As of April 5th 2021, a new US policy is requiring immediate release of records to patients. The rule require US healthcare providers to give patients access to all the health information in their electronic medical records without charge. In Sweden, we can access most of the information from our electronic health records through the…
Swedish patients’ access to their psychiatric notes | Participatory eHealth
I'm very thrilled that my PhD student Annika Bärkås has published the first paper for her PhD thesis! For a thesis in our field in Sweden, it is expected to have at list 4 papers in your PhD thesis, and at least two of them should be published at the time of the PhD defense…
Academic tourism and World Heritages | Participatory eHealth
Do you miss travelling to conferences? I do. Of course I see the benefits of less travelling too - for environmental reasons not the least! We can meet online, it's easier to squeeze into busy schedules, more people will have the opportunity to attend etc. But I still miss the travel experiences, this is often…
What happens when the patient portal does NOT give full record access? | Participatory eHealth
[This text is re-posted from the NORDeHEALTH project website] We have recently published a new paper analyzing data from the Swedish 2016 survey to users of the Swedish patient accessible electronic health record (PAEHR) “Journalen”: Hägglund M, Scandurra I. Usability of the Swedish Accessible Electronic Health Record: Qualitative Survey Study JMIR Hum Factors 2022;9(2):e37192 A survey study was…
Work life balance (and vacation) | Participatory eHealth
If it's one thing I'm struggling with that has been even more difficult during the pandemic, it's finding the balance between work and rest. As I've been working exclusively from home for the past year, this has been increasingly challenging. When there's not much else to do - work has taken over most of my…
Plenary Session at the European Patient Forum Congress | Participatory eHealth
In a few weeks time, I will deliver a Keynote speech as part of a Plenary Session organized by the BMJ at the EPF Congress. The session is scheduled for October 26th 13.00-14.00 CET. Patients’ access, control and ownership of health data remains key topics to address to harness health data for better patients’ care.…
BMJ webbinar series | Participatory eHealth
Tonight at 6 pm (Swedish time), I will the speaking in the fourth and last of a series of webinars organized by the BMJ on patients access to their health records. I will be giving an international overview and discuss some of the implementation challenges we have identified in research studies in Sweden and internationally.…
Recording from European Patient Forum 2021 | Participatory eHealth
https://youtu.be/oCdr22KqrTI?list=PLKudn8e8g-OHUxEB30E016qfRvZmhAOCE BMJ session at the EPF Congress I was very happy and proud to be invited by the BMJ to give an international overview of how patients' are given online access to their health data (specifically the electronic health records). We had a great discussion, and the recording is now available! If you have more…