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My youngest experienced our school district's wonderful tradition for graduating seniors yesterday. The graduating seniors return to their elementary schools and do a "Senior Walk." The littles love to see them, and the teachers do as well. Graduation week is always emotional; it always is. It was touching when my oldest graduated, so I was prepared. Or so I thought.
When your child is in clinical trials, you become an expert at filling out surveys. One survey that I dreaded every month for almost 2 years was a Duchenne parent survey. The questions were simple by design but deceptively difficult. One of the typical questions I was asked was similar to this – Can my […]
One of the hardest things about being a special needs mom, especially if your child needs a lot of 1:1 assistance, is carving out quality time for others. Friendships will suffer if you aren’t careful and don’t intentionally work at them. The sad, hard truth is that friendships will change over time. That’s true for […]
What is fear? Is fear good or bad? Is fear helpful or harmful? Fear’s purpose is to alert us to the presence of danger or a threat of personal harm – be it physical or psychological. If fear is serving its elemental purpose, it’s a good thing. Right? Once we’re alerted to the danger, we […]
Well-meaning people tell me all the time that God won’t give me more than I can handle. I just don’t think that’s true. I appreciate the sentiment. I know it’s meant to make me feel better about the special needs/medically complex life we now reside in. I believe that God WILL absolutely give you more […]
The definition of suffering is “the state of undergoing pain, distress, or hardship.” The definition of suffering is NOT “the state of mentally berating yourself for not being as strong as you think you should be.” Suffering, pain, distress, and hardship come no matter what. It’s a part of this world. So, please don’t make […]
When I was a little girl, my dad’s favorite evening pastime was to scare my sister and me. My sister loved it but oh how I hated it. My sister and I developed a sixth sense about it though. We could almost feel when he was hiding. My sister would slowly creep to the next […]