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Finding Cooper's Voice

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Kids & Parenting

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Finding Cooper's Voice

03.04.2025

Seeing Autism Through Your Eyes - Finding Cooper's Voice | Welcome to the Secret World of Autism

They were seeing autism. They were seeing our son. I’m sure most of them had questions, but no one asked.I forget sometimes. I forget that our world is so colorful and loud and intense and joyful because it’s the only world that I know.

Finding Cooper's Voice

12.04.2025

A Seat at the Table: Championing Severe Autism in D.C. - Finding Cooper's Voice | Welcome to the Secret World of Autism

Individuals with severe/profound autism and their caregivers/families are so often left out of the conversation and robbed of a seat at the table. We are isolated and forgotten, even though 27% of individuals with ASD are severe/profound.The Authentic Awareness Assembly event, put on by the National Council on Severe Autism (NCSA), gave families like ours a platform to advocate directly to legislators.

Finding Cooper's Voice

18.04.2025

Autism Is In The News - Finding Cooper's Voice | Welcome to the Secret World of Autism

Autism is in the news right now. And I keep thinking… There has to be an in-between space right now. If you are anything like me, this polar extremism makes me want to hide. And stay silent. I’m scared to comment. I’m scared to share. Like it’s a minefield and I don’t want to misstep. My son Cooper is 14 years old. Eleven years ago, we heard the words… Severe Nonverbal Autism. Boy, it about broke me. And yes, for anyone wondering, we knew it was coming. He had no…

Finding Cooper's Voice

18.04.2025

Everyone’s Accepting of Autism—Until They’re Not - Finding Cooper's Voice | Welcome to the Secret World of Autism

Everyone’s accepting of autism until you see my boy on the floor, mid-meltdown, and blame my parenting. The whispers and the stares as you walked past were not unnoticed, but my child needed me more than you needed my reaction.Everyone’s accepting of autism until his stimming doesn’t quite fit in your little box and you feel like he’s too old to behave that way.

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